Welcome to CTEPH.com

CTEPH, or chronic thromboembolic pulmonary hypertension, is a rare type of pulmonary hypertension (PH).

It can be overwhelming to find out you have CTEPH, and you probably have a lot of questions. By being informed, you can learn to successfully manage your condition. Talk to your doctor if you have any questions or if you want to learn more about CTEPH.

 

The most common symptoms of CTEPH are similar to those of PH, including shortness of breath with exercise, fatigue, or weakness. While CTEPH can be life-threatening, it’s the only type of PH that can be cured in some people with a type of surgery called PTE, or pulmonary thromboendarterectomy.

 

 

My CTEPH Story

Finding out you have CTEPH can be difficult. Hear personal stories of real people like you living with CTEPH.

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Recently Diagnosed With CTEPH?

Recently Diagnosed With CTEPH?

Get helpful tips and more information about your condition.

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1 in 25 people who had a pulmonary embolism (PE) (a blood clot in the lungs) could develop CTEPH.*

1 in 25 people who had a pulmonary embolism (PE) (a blood clot in the lungs) could develop CTEPH.*

*Based on a study with 223 patients in which approximately 4% were diagnosed with CTEPH within 2 years of their first episode of pulmonary embolism (blood clot in the lung). CTEPH did not develop after two years in any of the remaining patients.

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